Friday, January 14, 2011

Riddle me this Riddle me that

Oh yes, once again I hit up my blog, woohoo go me. Okay enough of that, here is today's topic.

Research.....

Lately I have noticed a growing trend on my twitter and facebook of those who are tired of research on autism and think that it needs to stop in order for the kids who are dealing with it now to get more help.

Okay that is understandable, I would give up both my legs and arms for Kenz to have more....but....

Here is where I tend to think parents are forgetting the big picture. (Nothing against this way of thinking at all, seriously.)

The big picture meaning, without research into the causes of autism there can be no forward thinking therapies developed. Without research into the cause of autism, the way to fix the problem, (i.e. the growing numbers) will never be discovered.

Maybe I am by myself in this thought: If they were to discover some form of surgery, or vitamins, or the like that would fix Kenz would I do it? Oh yes, yes I would in a heartbeat. I know this sounds like I don't love my child for who she is, but I do. She normally, (on her very good days) a very sweet child, and makes the sun shine brighter when she smiles and laughs. But, and this is a big one, she isn't happy. As a barely communicative child, we have the meltdowns, the attacks on herself and me and my husband, the screaming, the biting, headbutting, throwing herself off of things, etc. So yes, if I could change that and get her to the point of enjoying life at the fullest, (having friends, enjoying movies, even just hanging out with the family, school activities, etc.) oh you darn well know I would.

So those of you who think money should be removed from research, great, I hope that your children are much better than mine. Cause I want those answers so future generations don't have to have the problems we are facing.

I love my daughter and who she is: a great big ball of energy, and a very goofy kid.

So for those of you who do want the research: (shameless plug here!) go to our research project's web page and help out. https://sites.google.com/site/theautismfamilytree/home

Sorry if I offended or made anyone angry with this post, I am just stating what I am thinking.

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